I wish….

I wish I could always protect Bridget from the mean people in this world.

I live in a bubble, to be honest.  I have a tremendous village.  Bridget has incredible people in her life that accept her for the person she is, with love. The acceptance she receives has allowed her to attend summer camps, be an active member of  the general education classroom, ride the big yellow bus like a normal kid.  I truly believe that our village has allowed Bridget to be an important part of our town, of our society and allow her a sense of being a normal kid.

Not a different one. Continue reading

It’s a family thing

When your child is diagnosed with autism you think okay, I know what autism is–I’ve seen Rain Man and Big Bang Theory. I know “someone” whose child has autism. You start therapies and treatments, but living with autism cannot be explained by the doctors or therapists.  Autism is more complex than I imagined. Bridget wasn’t the only one diagnosed with autism. It seems like the entire family has been diagnosed. Continue reading

What I want to learn.

I’ve been thinking about the murders and terrorism in New Zealand today

And saw this meme

Thought about all the hate in this world.

It makes me sad and heartbroken

Just like the Holocaust survivors murdered in the Synagogue, people were murdered in their house of worship

They should’ve been safe

I’m so sad

It’s not fair. It’s not right. We as a global society are better than this. They deserve more.

They deserved to live.

We need to stand against hate

In our neighborhood

In our Country

In our World

What I want, no need, to learn is how to make our world safe for my girls.

Safe for your children

Safe for all

Because we need to stand against this terror

We need to stand shoulder to shoulder without neighbors and say you’re safe with me

*****

This is how I Finished the Sentence, I want to learn…,

I want the movies to be safe

In 2013, a child with Down Syndrome went to the movies and was murdered by off-duty police officers working as mall security.

Let that sink in.

A child was murdered by police officers because they did not recognize that he had a disability. He was murdered because they did not know how to deescalate the situation. He was murdered because they were not trained.

They did not know.

This is why I am have been writing all month for Rare Disease and PACS1 Month. Continue reading

It’s complicated, but not

I was talking with a few moms whose children have special needs. We were talking about how some things are just normal for us that our normie friends just don’t get.  Which makes sense, those of us in the conversation have older normie kids. We all admitted that until we started down a different road, we had no clue either.

Yes, this life is more complicated than the one I expected. But in all seriousness, life with Bridget is not that much more complicated than parenting Abby. Continue reading