Author Archives: firebailey

About firebailey

I possess many titles: wife, mom, advocate, runner, Bruins fan, lover chocolate and Parrot Head. I believe you can conquer any challenge in this world with family, good friends and wine. I write about most of that and more while keeping my sense of humor in this life I never expected.

Mermaid is Bridget’s Spirit Animal

I always miss summer. Other than hockey season, summer is my favorite time of the year. Yet this year, summer was so special for Bridget it makes autumn harder for me to accept. This year Bridget didn’t just rock summer she conquered more milestones that I could have imagined back in June. Continue reading

Back to school, bring on the IEP

How often do you look at your child’s IEP? I know I used to look at it right before an IEP meeting, then I would review it afterwards, sign and move on.   I learned my lessons over the years.

For those who are just entering the IEP there are a few facts to remember. Continue reading

It gets less scary because she has a village

Bridget starts 4th grade today.

It’s crazy to me, but this year I am not scared. I’m lucky because this year her classmates include her hero Jake, a friend since preschool, her best buddies S & A who have included her in their group since 2nd grade and other true friends that look out for her. She gets invited to playdates and birthday parties, not because they have to but because they want Bridget to be with them. Continue reading

It all comes together

Bridget is ten years old and has spent 9 years and 3 months of that time in therapy. First it was physical therapy. Then feeding. Over time occupational therapy was added and finally speech therapy.  We would take minor breaks over the years but they were more mini-vacations than actual breaks. She has always had at minimum one therapy a week.  Bridget works very hard to live her best life.

We live with the motto, they said she would never so let’s prove them wrong. Continue reading

When it’s more than participation

This summer Bridget was beyond lucky to participate in the Sail Cape Cod adaptive sailing program thru the Special Olympics and Kennedy Donovan Center.  Adult and teenage volunteers taught Bridget and her peers every aspect of sailing. They learned to tack, to raise the sail and to race.

Just like almost every child that lives on Cape Cod, Bridget got to experience the sea.

On her own.

img_3326 Continue reading

I wish….

I wish I could always protect Bridget from the mean people in this world.

I live in a bubble, to be honest.  I have a tremendous village.  Bridget has incredible people in her life that accept her for the person she is, with love. The acceptance she receives has allowed her to attend summer camps, be an active member of  the general education classroom, ride the big yellow bus like a normal kid.  I truly believe that our village has allowed Bridget to be an important part of our town, of our society and allow her a sense of being a normal kid.

Not a different one. Continue reading

It’s a family thing

When your child is diagnosed with autism you think okay, I know what autism is–I’ve seen Rain Man and Big Bang Theory. I know “someone” whose child has autism. You start therapies and treatments, but living with autism cannot be explained by the doctors or therapists.  Autism is more complex than I imagined. Bridget wasn’t the only one diagnosed with autism. It seems like the entire family has been diagnosed. Continue reading

What I want to learn.

I’ve been thinking about the murders and terrorism in New Zealand today

And saw this meme

Thought about all the hate in this world.

It makes me sad and heartbroken

Just like the Holocaust survivors murdered in the Synagogue, people were murdered in their house of worship

They should’ve been safe

I’m so sad

It’s not fair. It’s not right. We as a global society are better than this. They deserve more.

They deserved to live.

We need to stand against hate

In our neighborhood

In our Country

In our World

What I want, no need, to learn is how to make our world safe for my girls.

Safe for your children

Safe for all

Because we need to stand against this terror

We need to stand shoulder to shoulder without neighbors and say you’re safe with me

*****

This is how I Finished the Sentence, I want to learn…,