Author Archives: firebailey

About firebailey

I possess many titles: wife, mom, advocate, runner, Bruins fan, lover chocolate and Parrot Head. I believe you can conquer any challenge in this world with family, good friends and wine. I write about most of that and more while keeping my sense of humor in this life I never expected.

This photo shows

I love my IPhone but are you like me and your photos now live online rather than on your walls?  This one though I’m going to print. It shows how lucky I am. It’s a photo taken when Bridget was bored at a restaurant and so that I could finish my pinot meal her sister took her shopping.  Her sister let her pick out something and then showed her how to pay.

This photo shows why grandmas are always loved more than moms. This photo shows joy that we all should feel and carry with us. Continue reading

Milestones…

All kids have milestones that are not in the what to expect (not!) handbook.  New moms and dads dream about the first “momma”, the first fish caught and the first time their screaming newborn sleeps through the night.

There are however other milestones they are not aware of and some even I never expected.
Continue reading

I had another post planned…

Today I was going to participate in the Finish The Sentence Prompt hosted by the fabulous Kristi of Finding Ninee and her friends Mardra  and Kenya. Instead I am sitting here with goosebumps, sick to my stomach.

We lost another person to Suicide, Anthony Bourdain. Continue reading

Graduation Day

This past weekend was Graduation weekend on the Cape. I love attending graduation and seeing children that I’ve known longer than they’ve been alive in their cap and gowns. I burst with pride alongside their parents and loved ones, knowing how hard they worked for this small piece of parchment.  I take pride in knowing my signature is on their their diploma. That I had a very small hand in helping them succeed.

Truly it is one of my most favorite days of the year. Continue reading

More than words

You know when you think something is working and by all appearances it is, then you let someone else test your “thing” and it malfunctions? You have to go back to the drawing board and you are frustrated because you were so sure that your “thing” was working perfectly.

That my friends is life with Bridget.   Continue reading

He gets her

Bridget has this super cool friend, Charlie.  Charlie is awesome. He walks her to class every day. He watches out for her at parties. Charlie is the boy that if Bridget was a typical second-grader I would be joking with his mom that I hope he stays sweet and takes her to prom one day. Continue reading

This is Autism

Today I’m reposting a blog from last year. I think it is important to remember there are many faces of Autism….and most of them don’t have it.  The parents and siblings (and everyone else) who live with Autism never seem to be recognized. Yet without their support, the person with Autism would have so many more struggles to be included.

Originally posted on 4/3/17

A parent walks into the store, dragging her child kicking and screaming as other shoppers look on.  A sibling walks into the store and says, “next time I will babysit so you can try to get the shopping done”.

A parent answers, “What time is it” for the 500th time with patience that is waning. A sibling tries to redirect the looping by distracting them with Disney Jr.

A parent tells her other child that they cannot attend the school play, because their sibling cannot handle the lights and sounds. A sibling whispers they understand while their heart is breaking. Continue reading

5 minutes to Home

I never thought I would have a home.  A true home. I always wanted one. I wanted someone to say Good Night John Boy. I wanted a place that would never be taken away, that would be safe and whole. Where people stayed. Not for a few months or years before moving because we needed to go NOW without a plan or a safety net.

Just a home, one where there was laughter and sunshine.  Continue reading