Author Archives: firebailey

About firebailey

I possess many titles: wife, mom, advocate, runner, Bruins fan, lover chocolate and Parrot Head. I believe you can conquer any challenge in this world with family, good friends and wine. I write about most of that and more while keeping my sense of humor in this life I never expected.

We might not be there

When you have a child you never worry about them outliving you. Heck you hope they do. I have big plans for Abby. Not huge ones. I don’t expect her to mediate world peace, I am not hoping she has a Walton family, I just want her to be a productive member of society and happy. Being happy is important.

As with so many milestones, Bridget is different. Continue reading

Happy PACS1 Day

February 7th is PACS1 Day. It’s true, the Governor declared it in Massachusetts. Also the PACS1 parents have declared it world wide. We are a small group of dedicated parents. I am not always sure if I ever give enough credit to the parents of our group. A group that has grown from 13 (when I joined) to over 130 families in the world. And some of the PACS1 parents are not (gasp) on Facebook. Continue reading

Chicago (not the musical)

Years ago I wrote a post titled, Shhhh they can hear you. It was about how if a child is non-verbal, it does not mean they cannot hear (and understand) what you are saying.  It is important to remember that our children are always listening. That they might not understand what we always mean and how they interpret what we say can some times be hurtful.

And sometimes it can lead to a comedy of misinformation. Continue reading

When she may not do it

Abby is learning to drive. Which is great and huge. Except Bridget thinks she can drive, too. Recently Abby drove to work and afterwards this happened:

Bridget was moving her booster seat to the drivers seat.

Me: Bridget what are you doing?
Bridget: I can drive, just like Abby
Me: Bridget you cannot drive
Bridget: Yes, I can drive
Me: Um, no
Bridget: Mom I got this, I can drive. I know how
Me: Bridget you are not old or tall enough
Bridget: That’s your issue Continue reading

I blinked, again

In the summer of 2016 I wrote about how I blinked and Abby went from sitting backwards in a car seat to sitting next to me in the passenger seat. I wondered how the heck did that happen? When did my baby become a tween in control of my car radio? I miss having control over the radio, truth be told.

This fall Abby went from the passenger seat to the drivers. I blinked and my baby went from needing me to chauffeur to in just a few short months she will be asking me for the car keys.

I’m good with that, I have always been okay with Abby is X age this is supposed to happen. It drives my mom nuts that I don’t place a lot of significance on the “first day” of whatever milestone Abby is achieving. I usually reply, I’d be worried if she didn’t!

What I am having struggles with is having a teenager with a permit and answering her questions. The endless questions. Continue reading

Christmas Cards

Last week Bridget’s class was doing a Pen Pal project. Her class had partnered with other Unique classrooms to send Christmas Cards to one another from across the country.  The parents in her class were asked to send in our family Christmas card.

Except I haven’t done a Christmas card since she was two and tortured by the fat man in a red suit. Continue reading

The Gift

Every year I am asked, “What do you want for Christmas?”.  This is always hard for me, because I don’t like to say what I want. I want to be happy with what I have. This year was different. When I have already been given the perfect gift and do not need anything else.

This was the first year Bridget hosted a birthday party. Continue reading

Dear Teacher

Dear Teacher (ESP/Therapist),

This is not about how much we know you care about our children. We know you struggle with them (some days) and you never give up on them. It’s about the process in reporting their progress that hurts.  It also doesn’t make sense.

How can a standard report card accurately state how my child (or any child with an intellectual disability) is doing in 4th grade? Continue reading