Bridget has this super cool friend, Charlie. Charlie is awesome. He walks her to class every day. He watches out for her at parties. Charlie is the boy that if Bridget was a typical second-grader I would be joking with his mom that I hope he stays sweet and takes her to prom one day. Continue reading
Monthly Archives: April 2018
Finish that Photo
Today’s FTSF Prompt is to show a photo and tell the story behind. it. I’m going to do this a little backwards today. Instead I am going to tell you about the photo, about why these photos are so important and then show you them. Continue reading
This is Autism
Today I’m reposting a blog from last year. I think it is important to remember there are many faces of Autism….and most of them don’t have it. The parents and siblings (and everyone else) who live with Autism never seem to be recognized. Yet without their support, the person with Autism would have so many more struggles to be included.
Originally posted on 4/3/17
A parent walks into the store, dragging her child kicking and screaming as other shoppers look on. A sibling walks into the store and says, “next time I will babysit so you can try to get the shopping done”.
A parent answers, “What time is it” for the 500th time with patience that is waning. A sibling tries to redirect the looping by distracting them with Disney Jr.
A parent tells her other child that they cannot attend the school play, because their sibling cannot handle the lights and sounds. A sibling whispers they understand while their heart is breaking. Continue reading
Some days you cannot be a Princess
Bridget loves her princesses. It is funny and shows nature over nurture. I am so not a princess and Abby has been done with make-believe and princesses for years. Bridget loves princesses.
You name a princess she loves them and rainbows. She really loves rainbows.
But… Continue reading
5 minutes to Home
I never thought I would have a home. A true home. I always wanted one. I wanted someone to say Good Night John Boy. I wanted a place that would never be taken away, that would be safe and whole. Where people stayed. Not for a few months or years before moving because we needed to go NOW without a plan or a safety net.
Just a home, one where there was laughter and sunshine. Continue reading
Little known fact
When you have a child with a rare disease or a complex medical condition there are may facts you do not know. You do not know how to navigate the healthcare and insurance systems. You do not know how many specialists, therapists and pharmacists you will meet. You do not know how many times you will endure ER visits and hospital.
It’s it in those two locations that there are some little known and unexpected facts you will need to learn. Continue reading
There are days…
When you live life with a child who faces many hurdles, there are times when they will make you worry and despair.
Then there are days like this, when they put a permanent smile on your face. Continue reading
When hope is all you have
I received a text from Bridget’s teacher the other day. She was asking if something happened at home she should be aware. Bridget had been crying off and on all morning. They had never experienced this behavior before.
My first instinct was to respond welcome to my life. Continue reading
My first week back blogging and my friend Kristi made it easy for me with a Finish That Sentence Listicle.
Ten Things I Hate About …. Facebook! (and it’s not Mark Zuckerberg’s fault) Continue reading
I was holding her back.
My mother-in-law moved in about a month ago. In doing so we had to realign the bedrooms in the house. She moved into Bridget’s room (first floor) and we moved Bridget to a smaller room upstairs. Bridget only needs a bed and a dresser. In truth her bedroom was the guest room with a toddler bed in it. Continue reading