Category Archives: village

I had another post planned…

Today I was going to participate in the Finish The Sentence Prompt hosted by the fabulous Kristi of Finding Ninee and her friends Mardra  and Kenya. Instead I am sitting here with goosebumps, sick to my stomach.

We lost another person to Suicide, Anthony Bourdain. Continue reading

Finding your way

When your child is diagnosed with cancer, mental illness, a Syndrome, ADHD, Autism, (put your child’s struggle here) or PACS1 a parents first thought is usually a variation of HOLY CRAP to what the heck do I do now?

The truth is, there is no road map to parenting a child who has more than typical needs.

  • Whether it is learning that your child is not suffering from normal teenage angst but a serious mental illness.
  • Whether it is learning that your child just isn’t making milestones but is seriously behind their peers
  • Whether it is learning the worst news a parent can receive, that their child may have a terminal diagnosis
  • Whether it is learning that your child has ADHD, something too many people think is a made up word for bad parenting
  • Whether it is learning that although you always fed your child healthy meals, that child is now bulimic or anorexic
  • Whether it is learning that your child committed a crime, even though they are a straight-A student
  • Whether it is learning that your child was killed in a drunk driving accident, even though they were sober in the car

When a parent learns any of the above (or worse), that is sometimes all they learn. They may be given a pamphlet of with website information. Their child may be placed on medication. Yet from this moment on, that parent is facing the battle to have their child survive without any clue of how to start. Continue reading

And then I was fixed, well more a work in progress

I was asked recently about “fixing” Bridget. I was very happy Bridget wasn’t there to hear the question.

I understand that Bridget is different, but I do not want her to see different as bad or something that needs to be “fixed”. She isn’t a flat tire but a person.  Continue reading

I’m okay with imperfect holidays

I used to be the Clark Griswold of Christmas. I decorated every room in the house. I put ribbons, bows and labels on gifts. One year each member of the family had their own individual wrapping paper. I was the hostess with the mostess, a caterer could not put on a better meal.  I knew exactly what I was getting everyone and planned out the holiday season to the moment. Each gift was chosen with thought and care. There was a time when I would shop throughout the year and remember where I put the gifts. Continue reading

When you don’t land where you planned

When you first enter a Children’s hospital, scared out of your wits, most likely you will see a plaque or a friend will send you the link to read the poem, Welcome to Holland by Emily Perl Kingsley. You find solace, at first. Knowing that another parent understood how you are feeling at this moment. At this moment when your child is not the one you planned but the one you must make heartbreaking decisions.  You prepared for one journey and ended up not even close to where you planned. Continue reading

Why you need honest friends

The other night I had a too-real dream of Bridget dying; by drowning.  The dream so real, I woke with tears on my face as I hurried to her room to check on her.  Me, a person who when asked would claim she never has anxiety and thinks she is cool under any circumstance.  Here’s the dream: Continue reading

I was THAT mom

I recently received an e-mail from a mom who is just beginning her special needs journey.  She googled a few terms and this blog showed up in her search (wow!). As I read her e-mail I was suddenly taken back to that place. The place where I was completely overwhelmed and wanted Dr. Google to explain what was wrong with my child.

fd7e1-boo1moldinchb

I remember looking into this face and feeling so overwhelmed and ill-prepared to deal with a child who had health issues.  Not knowing in that moment that this would actually be the easy time. A time when we were cocooned with doctors and nurses just a call bell away.  Continue reading