Tag Archives: awareness

This is an Autism Family

A parent walks into the store, dragging her child kicking and screaming as other shoppers look on.  A sibling walks into the store and says, “next time I will babysit so you can try to get the shopping done”.

A parent answers, “What time is it” for the 500th time with patience that is waning. A sibling tries to redirect the looping by distracting them with Disney Jr.

A parent tells her other child that they cannot attend the school play, because their sibling cannot handle the lights and sounds. A sibling whispers they understand while their heart is breaking. Continue reading

I wish I knew….

I remember the first time we realized something was “wrong” with Bridget. At just a day old we thought it was just a health complication. One that would resolve. Less than a year later after more doctor appointments than I can recall we were given the news:

Your child has Special Needs. Continue reading

My Best Friend Bridget

It finally happened. Bridget was invited over for her first ever official play date. A girl she went to school with last year had moved onto kindergarten without Bridget. Although “A” made new friends in kindergarten she never forgot her first “best friend” Bridget. She invited us to birthday parties and other events.

This would be the first time I would be just dropping off Bridget and going to work. In full disclosure, the mom is a trusted ESP who knows Bridget inside and out. I probably would not have been comfortable otherwise. Nervous, though, when I heard other neighborhood girls might be over to play.

Will they understand Bridget? I wondered. What if her friend is embarrassed or doesn’t want to play with her when her friends arrive? I worried.

For nothing. While I was at work worried that Bridget would not be accepted this happened:

She also played tea party, play dough (a substance banned from my house), painted and played. Bridget spun on the gymnastics bar and tried to do a cartwheel. She had snack and watched Sofia with the girls. She played Legos and colored.  Bridget played for hours with children her actual, not developmental, age and older then her.  It wasn’t noticed by any of the children that she was different than them.

My heart got three sizes too large as the text updates came in.

To “repay” our friend we had them over for dinner the following night. I watched as “A” interacted with Bridget. How she slowed down for her without realizing or explained how to play with the Barbie. I thought this is how it will be for Bridget. All her hard work, the therapies, the schooling will enable her to forge friendships. The typical peers will accept her for who she is and she will be included in their lives. Not because they have to, because they like Bridget.

Then “A” called Bridget a weirdo.

Here’s the thing though, Bridget was acting silly. “A” wasn’t being mean at all. She was laughing and treating Bridget just like she would any of her other friends. She called her on her silly behavior. When her mom (horrified) went to explain that “weirdo” wasn’t a nice word, “A” replied: it’s my best friend Bridget. I would never hurt her, she was just being silly and we were laughing.  I felt bad, honestly. I had overheard the exchange and knew “A” didn’t mean any harm. She was just laughing with her friend. Yet thankful that my friend had overheard as well and used the moment to make sure that harmful words would not used to describe my child.

Sometimes a word is just a word but it serves as a learning moment for a little girl who just repeated a term she used in school.

One word she will now defend her best friend Bridget against.

Her Best Friend Bridget

1000 Speak, well more really

About a month ago two bloggers had this idea: to flood the internet with stories of compassion. To battle back the dark news, the horror of this world and show that there is still good to be had. The date was chosen, Feb 20th and the rallying cry was heard: Let’s get 1,000 bloggers to talk about compassion.

They didn’t get 1,000 bloggers though.

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Autism cannot be cured

I believe in autism. I believe that so many families battle autism like warriors. I believe autism can be masked and I believe that autism can be hidden.

I do not think autism can be cured and question that it should be. Continue reading

My Challenge: Kerith

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Today I am so happy to introduce Kerith from Brielle and Me to the My Challenge Series. Kerith is the mom to two beautiful daughters, one with CMV (cytomegalovirus).  Kerith is sharing another challenge today, one we can all relate to in the pre-holiday season: our weight and the importance of making ourselves a priority.

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Good things come in Three or thanks to Coach Eli

Thanks to Coach Eli for helping me with today’s post. I normally don’t worry about writing every day but I am committed to the 31 for 21 challenge. Or should be committed, but let’s just say I love a challenge. But needed a prompt.
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I’m thankful for the GAP

Words I never thought I would utter. But truly, I am thankful for the GAP. Ellen at Love that Max  posted a picture on Facebook of the latest GAP add. Giving them a shout out for including a girl with cerebral palsy.

I had to blow up the add to the full-view to find her.

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31 for 21

I have been blogging for about four years now. In my first year my friend Michelle at Big Blueberry Eyes began hosting the 31 for 21 challenge. Although Boo doesn’t have Down Syndrome she has a lot of friends that do.  I have participated for the past three years and will do so again this year. 

And this year I am starting on time, so bonus points!
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