I possess many titles: wife, mom, advocate, runner, Bruins fan, lover chocolate and Parrot Head. I believe you can conquer any challenge in this world with family, good friends and wine. I write about most of that and more while keeping my sense of humor in this life I never expected.
Today I’m reposting a blog from last year. I think it is important to remember there are many faces of Autism….and most of them don’t have it. The parents and siblings (and everyone else) who live with Autism never seem to be recognized. Yet without their support, the person with Autism would have so many more struggles to be included.
Originally posted on 4/3/17
A parent walks into the store, dragging her child kicking and screaming as other shoppers look on. A sibling walks into the store and says, “next time I will babysit so you can try to get the shopping done”.
A parent answers, “What time is it” for the 500th time with patience that is waning. A sibling tries to redirect the looping by distracting them with Disney Jr.
A parent tells her other child that they cannot attend the school play, because their sibling cannot handle the lights and sounds. A sibling whispers they understand while their heart is breaking. Continue reading →
I never thought I would have a home. A true home. I always wanted one. I wanted someone to say Good Night John Boy. I wanted a place that would never be taken away, that would be safe and whole. Where people stayed. Not for a few months or years before moving because we needed to go NOW without a plan or a safety net.
When you have a child with a rare disease or a complex medical condition there are may facts you do not know. You do not know how to navigate the healthcare and insurance systems. You do not know how many specialists, therapists and pharmacists you will meet. You do not know how many times you will endure ER visits and hospital.
It’s it in those two locations that there are some little known and unexpected facts you will need to learn. Continue reading →
I received a text from Bridget’s teacher the other day. She was asking if something happened at home she should be aware. Bridget had been crying off and on all morning. They had never experienced this behavior before.
My mother-in-law moved in about a month ago. In doing so we had to realign the bedrooms in the house. She moved into Bridget’s room (first floor) and we moved Bridget to a smaller room upstairs. Bridget only needs a bed and a dresser. In truth her bedroom was the guest room with a toddler bed in it. Continue reading →