Tomorrow is February 7th. The very first PACS1 awareness day. Feb 7th was chosen as it the day the first child was diagnosed. The first of 20 children. In the World. The parents of children with PACS1 are speaking up and out as loud as we can so another parent does not have to undertake the same journey. So that a parent, somewhere in this big world. will get their mystery solved sooner rather than later. Continue reading
About a week ago I changed the name of this blog (but not the URL) to Diagnosed and still okay. No one noticed. It could be like getting a haircut and dyed purple and your spouse saying, hey there is something different about you. Instead I chose to believe it doesn’t matter. Those who have been around here for a while come not because Bridget was undiagnosed but because they care about the journey. Continue reading
When we traveled to Georgia to try to find the answer to Bridgetitis I remember hitting Connecticut when it hit me that we might not want to know. With another 15 hours in the car, instead of being filled with anticipation I was starting to doubt if this was the right course of action.
Did we really want to know the answer? Continue reading
(Un)Diagnosed and still okay 