Remember when I said we finally hit that typical milestone? The one that the school nurse calls and you have to take your child to get her eyebrow glued. Sigh. If only it ended there. Three days later my phone rings, again. “Hi Kerri, this is X from the school nurse’s office”.
Me: Did she hit her head again?
She: No, this time she has a sudden fever of 101.9 degrees.
This mom of the year couldn’t leave her office. Thankfully grandma was free and went to pick up the sick child. Then my phone rings, again. “Hi Kerri, this is mom. I don’t want to worry you but….I think she needs to go to the hospital.” Continue reading →
I recently received an e-mail from a mom who is just beginning her special needs journey. She googled a few terms and this blog showed up in her search (wow!). As I read her e-mail I was suddenly taken back to that place. The place where I was completely overwhelmed and wanted Dr. Google to explain what was wrong with my child.
I remember looking into this face and feeling so overwhelmed and ill-prepared to deal with a child who had health issues. Not knowing in that moment that this would actually be the easy time. A time when we were cocooned with doctors and nurses just a call bell away. Continue reading →
About a week ago I changed the name of this blog (but not the URL) to Diagnosed and still okay. No one noticed. It could be like getting a haircut and dyed purple and your spouse saying, hey there is something different about you. Instead I chose to believe it doesn’t matter. Those who have been around here for a while come not because Bridget was undiagnosed but because they care about the journey. Continue reading →
When we traveled to Georgia to try to find the answer to Bridgetitis I remember hitting Connecticut when it hit me that we might not want to know. With another 15 hours in the car, instead of being filled with anticipation I was starting to doubt if this was the right course of action.
At the beginning of the summer we took Bridget to see a Specialist 20 hours away from our home in the hopes to find an answer to Bridgetitis. We had gone on a search for our own Dr. House. We allowed them to perform Exome sequencing, where Bridget’s DNA would be (in layman’s terms since I really am not a scientist) broken down and reviewed by computer strand by strand allows the scientist to discover where the gene may have gone awry.