Category Archives: Bridget

What I want to learn.

I’ve been thinking about the murders and terrorism in New Zealand today

And saw this meme

Thought about all the hate in this world.

It makes me sad and heartbroken

Just like the Holocaust survivors murdered in the Synagogue, people were murdered in their house of worship

They should’ve been safe

I’m so sad

It’s not fair. It’s not right. We as a global society are better than this. They deserve more.

They deserved to live.

We need to stand against hate

In our neighborhood

In our Country

In our World

What I want, no need, to learn is how to make our world safe for my girls.

Safe for your children

Safe for all

Because we need to stand against this terror

We need to stand shoulder to shoulder without neighbors and say you’re safe with me


This is how I Finished the Sentence, I want to learn…,

I want the movies to be safe

In 2013, a child with Down Syndrome went to the movies and was murdered by off-duty police officers working as mall security.

Let that sink in.

A child was murdered by police officers because they did not recognize that he had a disability. He was murdered because they did not know how to deescalate the situation. He was murdered because they were not trained.

They did not know.

This is why I am have been writing all month for Rare Disease and PACS1 Month. Continue reading

It’s complicated, but not

I was talking with a few moms whose children have special needs. We were talking about how some things are just normal for us that our normie friends just don’t get.  Which makes sense, those of us in the conversation have older normie kids. We all admitted that until we started down a different road, we had no clue either.

Yes, this life is more complicated than the one I expected. But in all seriousness, life with Bridget is not that much more complicated than parenting Abby. Continue reading

Setting the bar

When Bridget was an infant and we heard the (thankfully false) prediction that she may never roll over or have a life of quality, we were devastated. Then we became Bridget’s warriors. We decided what goals we would have, we brought in therapists. We researched via Google. We found a team of therapists who were innovative and relentless in their quest to have Bridget obtain the tiniest of movements that snowballed into  her jumping on the bed.

It took 10 years, but my girl jumped on the bed while joyfully yelling, “Super hero slam!”. Continue reading


I consider myself very lucky that (for the most part) Bridget is an easy-go-lucky kid. In someways she is almost too compliant. She wants to please, never stops and questions a directive.  I understand that most parents would be woo hoo! But being Bridget’s mom it becomes a more complex issue.  This was illustrated in a way I hadn’t thought of the other day. Continue reading