Category Archives: Bridget

If we were sharing a bottle of wine

Let’s face it, times like this a glass may not be enough to cover everything we would share with just a glass of wine…

I would tell you we treated ourselves with take-out one night this week. It’s funny how much our lives have changed, I never realized how un-inventive I am when it comes to meal planning or how much I enjoyed eating out. Continue reading

I’m her therapist, not her mom

When you have a child like Bridget, you are frequently told during normal times (not this crazy time we are in) to let educators be educators, let therapists be therapists.   Be the mom (or dad) that takes the tools we are giving you (Bridget) and use them. We’ve taught her how to dress, reinforce that at home.

Then March 13, 2020, COVID-19  changed everything.

Families are not longer the reinforcers. They are the Enforcers. Continue reading

The lighter side of the pandemic

Please note, I would never ask a therapist, teacher, ESP or doctor/nurse work during this unprecedented pandemic.  However something is happening to families whose child has special needs and we have to talk about it.  This will be a continuing series as we navigate how to parent a child with significant special needs.

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It has been a very strange three weeks since our life changed forever on March 13, 2020. We are adapting to trying to homeschool. We are practicing life skills. We are trying to do therapies.

It’s been a difficult transition, but for the moment let’s focus lighter side of things.  During this unexpected school hiatus, Bridget has:

Been a flower girl and walked on the beach (without tears) Continue reading

When the day is meaningless

Please note, I would never ask a therapist, teacher, ESP or doctor/nurse work during this unprecedented pandemic.  However something is happening to families whose child has special needs and we have to talk about it.  

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Bridget is …. Bridget. In some ways she is the easiest child ever. She is easy to please, she more or less goes along with whatever we are doing.

She is also rigid. She expects on Tuesday to see Kelly and Maria. On Fridays she expects to go to the Y for swim.

She wishes every day was Friday. Continue reading

We had a little normal

Please note, I would never ask a therapist, teacher, ESP or doctor/nurse work during this unprecedented pandemic.  However something is happening to families whose child has special needs and we have to talk about it.

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This weekend we had a sense of normalcy.

Bridget made coffee cake. We did laundry (not as much as most weeks, bonus!). David and I went for a hike in the woods (a lot more people in there than normal) and reconnected as a couple. Continue reading

Friday, time to wine

Please note, I would never ask a therapist, teacher, ESP or doctor/nurse work during this unprecedented pandemic.  However something is happening to families whose child has special needs and we have to talk about it.

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If we were having a glass of wine, I would tell you how this third week of the pandemic is going.

I would tell you that being a working mom is still tough, but it is much easier to get to work in the morning when you don’t have to make lunches or fight with the kids to get out of bed.

I would tell you that my children have been in pajamas the entire week (they have bathed), but the amount of laundry has significantly decreased. Continue reading

Welcome to life with Autism

Please note, I would never ask a therapist, teacher, ESP or doctor/nurse work during this unprecedented pandemic.  However something is happening to families whose child has special needs and we have to talk about it.  

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I saw this on FaceBook the other day and felt it best described Autism Awareness Day:

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Bridget lives on a routine. She does not understand why she is not going to the Y on Friday. She thinks she is on school vacation because the bus hasn’t come. She knows it is Thursday and is wondering why she does not have therapy. I’m lucky because she is not so rigid that this is causing a behavior (yet). She is used to our life which is generally barely controlled chaos. School was her savior because the routine never fluctuated.

It’s not an easy life, living with a child who has autism.  With the “social distancing” and the disruption to all of our routines, I’m beginning to understand how vital structure and routine are for Bridget. I’m hoping it will make me more patient and understanding as we navigate this new reality.

Well played Autism Awareness Month, well played.

 

 

Unlicensed Home Physical Therapy

Please note, I would never ask a therapist, teacher, ESP or doctor/nurse work during this unprecedented pandemic.  However something is happening to families whose child has special needs and we have to talk about it.  This will be a continuing series as we navigate how to parent a child with significant special needs.

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I am not a licensed Physical Therapist.

I am very lucky to have friends like Leah.  Leah was Bridget’s first ever physical therapist. She taught me how to have alligator arms to encourage Bridget to take her first steps.  Last week she taught me a way to teach Bridget her letters and do some physical therapy. Continue reading

What questions should we be asking?

Please note, I would never ask a therapist, teacher, ESP or doctor/nurse work during this unprecedented pandemic.  However something is happening to families whose child has special needs and we have to talk about it.  

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Bridget is very lucky. She has forged relationships from her first ever therapists (SPT, OT, PT) through her most current ones. Like parents, these therapists feel helpless during this pandemic that have left them home and our children without any (or limited) education and therapy.

Two of them that I admire most asked me recently to start a dialogue. How can they help us help our children. One previous therapist told me, I worked too hard with Bridget we are not going to let this pandemic break her. Continue reading

Special Education, homeschool style

Please note, I would never ask a therapist, teacher, ESP or doctor/nurse work during this unprecedented pandemic.  However something is happening to families whose child has special needs and we have to talk about it.

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I have a child who has lost all special education.

I am not an educator and I am not a Special Educator.

I am not a stay at home mom. I work full-time (yes, even now during the pandemic). Continue reading