When you have a child with a rare disease or a complex medical condition there are may facts you do not know. You do not know how to navigate the healthcare and insurance systems. You do not know how many specialists, therapists and pharmacists you will meet. You do not know how many times you will endure ER visits and hospital.
It’s it in those two locations that there are some little known and unexpected facts you will need to learn. Continue reading
Have you seen this Facebook post?
Everyone says: ” If you need anything, don’t hesitate, I’ll be there for you “… so I’m going to make a bet (with being optimistic), I’m asking my ” you can count on me friends ” to put this on their wall. You just have to copy (not share). I think I know who I can count on… and I’m sure it will be less than 20!! Write “done” in comments when you’re done. It’s mental illness awareness month and I’ve done this for a friend… I pride myself on being there for my true friends. Continue reading
Remember when I said we finally hit that typical milestone? The one that the school nurse calls and you have to take your child to get her eyebrow glued. Sigh. If only it ended there. Three days later my phone rings, again. “Hi Kerri, this is X from the school nurse’s office”.
Me: Did she hit her head again?
She: No, this time she has a sudden fever of 101.9 degrees.
This mom of the year couldn’t leave her office. Thankfully grandma was free and went to pick up the sick child. Then my phone rings, again. “Hi Kerri, this is mom. I don’t want to worry you but….I think she needs to go to the hospital.” Continue reading
A year ago Bridget and I almost spent Christmas in the hospital. She had been so healthy and then BAM! A week before Christmas she was so sick we almost lost her. Again. That she was discharged on Christmas Eve was all the gift we needed.
2015 has been a good year for Bridget. No hospitalizations. Her doctor’s visits have been uneventful. Kindergarten started and she has made friends. We are merrily living our life and I was just starting to feel like we did not just survive 2015. We triumphed over it. Continue reading
About a year ago I decided to take up running. Not to be running from a serial killer but in an attempt to gain some better looking legs and mental clarity. While I have not gained either, I had really begun to enjoy running.
Thanks to Boo’s therapists, I discovered the Obstacle 5Ks. My mother thought I was nuts. Didn’t I remember that I trip on flat pavement? I do fall, often. However the team work and camaraderie at the races are beyond anything you can image. They became addicting. I have since done four obstacle races and have two more this fall.
I even got David, my nephew and his girlfriend addicted. Over the weekend we ran the Renegade Playground. After four months on the waiting list, this was the first race I was running for my buddy.
There was mud. A lot of mud. For a girl who really doesn’t like to get dirty can I say it was the more fun than you can imagine?
Plus there were balance beams.
I survived the entire race without a boo-boo. Not one scratch, bruise or concussion. Our team finished in 53 minutes, leaving no one behind. I even managed to survive the four foot walls.
It wasn’t until Sunday that I was in pain. Not from doing the run. From doing dishes. I managed to slice my thumb open. I ended up in the ER getting six stitches. And there was absolutely no wine involved.
This is what happens when you recycle. Here I was being a good person, cleaning out the soup can before it went to the recycling. I end up getting stitches. In the ER for three hours with a $90 copay. That equals out to $15 a stitch.
Sorry mom, but you were wrong. I was perfectly fine and undamaged doing the obstacle races. My next race is Sept 6th. I’m not doing any household chores the week before I want to be healthy for the race.