Tag Archives: bridget

It’s not all sunshine and unicorn butts

I am usually an optimistic person. It drives my husband crazy that I always look for the silver lining. The truth is, life with Bridget isn’t always easy. Beyond doctor, therapy, school and paperwork there is also just life with a child who cannot express her frustrations.

Recently I was taken aback when I was told that I am doing parents a disservice because I am promoting that having a child with special needs is all sunshine and none of the darkness.  I asked if they read more than one of my blog posts, because I tend to vent quite a bit on our struggles.  Continue reading

It’s 3am and I’m not lonely

It’s 3am, I hear you gasp over the baby monitor. Yes, at six years old you still have a baby monitor. My feet hit the floor before my eyes open. I barrel down the stairs to your room, turning on a hallway light so as not to wake your sister. I open your door to find you vomiting on your bed. You look at me, tears in your eyes disorientated by my sudden appearance. As I scoop you up, you point to the bed and say, “I mess”.

I gently wash you (and your bed). As I redress you I hear you whisper, I sleep mommy. You curl into my arms; secure in your knowledge that mommy will keep you safe. We crawl into my bed; you rest your head on my shoulder and gently rub my face. Sensory seeking as you begin to fall back asleep. I realize at this moment how much you have grown, your toes reaching my knees.

I remember that first day in the hospital, when you would curve into my chest your bottom in the air. You fit into my arms, like you were made for me. Tonight, just like then, you had to have your head just so under my neck. Unlike then your arms were not long enough to wrap around my shoulders. Your fingers could barely wrap around mine.

Boo 1m old in CHB

You slowly drift off to sleep. I listen to you breathe and remember when I used to have to count your breaths. In the semidarkness I watch your chest rise and fall. I remember how scared I used to be and give thanks that you are home in my arms. You open your eyes, say mommy and drift back to dreams.

I wonder what you are dreaming about. It must be nice, I think, as your lips turn up in a smile. I wonder if you are thinking about school or the latest Sophia episode. I remember when I worried that you would never go to school or have dreams. It is nice to have those fears disappear and hope emerge.

I forget, sometimes, how much you have grown. It’s moments like this, at 3am, where I realize you will always be my little Boo.

I am more than okay with that.

Kindergarten doesn’t start for another 5 days and I already hate it.

At the beginning of the summer I finally came to a sense of peace that Kindergarten was going to be okay. Yes, we would be leaving the cocoon of safety we had for four years. My reservations were being replaced by cautious enthusiasm that Bridget would be starting kindergarten in a few weeks. Then it happened. I was smacked in the head (again) that this would not be the easy transition I hoped. Continue reading

It’s the cost

I hate tax season. When I start compiling all the documents, look at our W2 forms and realize where all our money has gone. A good amount to charity, not a great amount, but a nice amount. Money we worked hard for and in David’s case a lot of overtime. Money we are saving for retirement seems to dwindle each year. Vacations become more camping trips and economical. Holidays and birthdays become less extravagant and more meaningful.

CNN reports that the “average cost” of raising ONE child from birth to age 18 is a staggering $245,000. That is a quarter of a million dollars. This is the “average”, according to the report those in the Northeast can expect to spend an estimated $455,000. A half-million dollars and costs are rising. And that doesn’t include what your family may pay for auto insurance, driver’s ed, tutors or college costs (or the cost of your 25 year-old that continues to live with you).

Let that sink in for a moment. Continue reading

The journey continues

About a week ago I changed the name of this blog (but not the URL) to Diagnosed and still okay. No one noticed. It could be like getting a haircut and dyed purple and your spouse saying, hey there is something different about you. Instead I chose to believe it doesn’t matter. Those who have been around here for a while come not because Bridget was undiagnosed but because they care about the journey. Continue reading