Author Archives: firebailey

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About firebailey

I possess many titles: wife, mom, advocate, runner, Bruins fan, lover chocolate and Parrot Head. I believe you can conquer any challenge in this world with family, good friends and wine. I write about most of that and more while keeping my sense of humor in this life I never expected.

On learning to see the person first

It took having a second child for me to understand that disability did not mean inability. I am guilty, like many others, of seeing the chair before the person in it. I would look at those with a disability and not see the person first.

After my second daughter was born my definition of disability was reborn. This wasn’t a child to be pitied or thought to be unable.  This child could accomplish anything she set her mind to, whether it was walking or climbing up the wrong side of the stairs. She would defy doctors and our own expectations too often for us to begin putting limits on her ability. I wanted everyone to see Bridget, not the things that set her apart from her peers.

ef13a-118 Continue reading

TBT–Run like you are in the ghetto

Throw Back Thursday, blog style. This post was originally published on August 15, 2013. (Proving that we do learn from our mistakes, we have never run this particular race again!)

Over the weekend we visited David’s cousins in Vermont. It was a gorgeous weekend and since I like messing with my husband I signed him up for a 5k without warning him. Continue reading

Today matters

Bridget has never obtained her milestones on time. There are some milestones we will never be able to record. Rather than dwell on those unattainable moments, I focus on the unique to Bridget milestones. Ones we never expected and the ones she worked so hard to accomplish.

Last week we had an epic milestone. Well, three milestones wrapped into a big one. Continue reading

Taking chances

Saturday was the first rehearsal for Listen to Your Mother. Let’s just say I was beyond nervous. I was up at the butt crack of dawn to make the snowy drive into the city. Snow, the second day of Spring and it was freaking snowing. Although at this point I would be more surprised if it hadn’t been snowing! Continue reading

Being Proud

Funny how when you are a parent your proudest moments do not come from your own accomplishments but those of your children. Even if you do not have children, if someone asked you what your proudest moment was I would bet you would stumble over your response. Continue reading

TBT–Truth

Throw back Thursday, blog-style. It’s time for a little truth that was originally published on August 11, 2013.

Since life is beyond crazy I am taking 5 minutes out of my day to write. Just write with a one word prompt: Truth Continue reading

I already hate Kindergarten

**Warning Rant Ahead****

Bridget started in a Montessori daycare within her first few months of life. Before we knew that our fragile daughter would soon become a ‘special’ child.

176Transitioning at age three to an integrated preschool was difficult. She was nurtured at Montessori, they accepted her for where she was at her developmental age and they encouraged her growth. There were no labels, there were no educational plans or processes. She was just Bridget. I was so nervous the first day of preschool. I felt like I was leaving my baby, the one who had so many struggles, in a cold classroom. I wasn’t ready. She was, thankfully, more than ready to spread her wings.  Continue reading

St. Patrick’s Day

St. Patrick’s Day, I have to admit, second only to Margarita day  is my favorite made-up adult holiday ever. I look forward to it every year. Honestly, after suffering through back to school shopping, finding a Halloween costume, play dates, kids birthday parties, surviving the freaking Elf and having to make Valentines that St. Patrick’s day is kind of my reward. Continue reading

TBT–What Happens….

Throw Back Thursday, blog style. This post was originally posted last spring. I was a bit, ahem, ticked off.

What happens when you begin to lose faith? In perspective we haven’t been on this journey long. Five years is nothing when compared to other children’s battles. Having a child undiagnosed with unexplained ailments compared being a parent whose child is fighting a life threatening illness is insignificant in comparison. Continue reading