Category Archives: parents

Remembering the parent

I’ve been really hesitant to write this post. First, I hate to jump on a bandwagon. I also hate being late to a party, even a pity one. Mostly, though, I do not ever want to come across as ungrateful or one that complains.

Truthfully, I have absolutely nothing to complain about. I am beyond lucky. I acknowledge that my situation is as wonderful as it is rare. I have a terrific village who supports my sanity. When life gets overwhelming I have some one within a text, an e-mail, a call or a walk to lean on. I get date nights with my husband and girls night in.

Not everyone is this lucky. They are isolated. They stay at home with their child, change how they go to Worship, do not attend family events, cannot find a babysitter and not even think about getting a pedicure. Moms like Kelli try to do everything right. They think that it is less disruptive for their child to stay home. They feel family gatherings are too hard to keep everything together and peaceful.

I do not know Kelli and only know about her circumstance from Julie, Jill and Kristi’s blogs. But I do know that not every child is like Boo. Some children with special needs are violent. They hurt themselves and those who love them the most.

When Kelli tried to kill herself and her daughter there was a lot of condemnation.  People have a difficult time understanding suicide. Let alone a mom who tries to harm her child.

The sad truth is, Kelli is not the only one out there. Statistically children in the US with special needs account for almost 10% of those who are abused. And they are abused by their caregivers. This is not just the US. World-wide disabled children are harmed more often than typical.

This is just supposition on my part, but I believe the abuse and the killings and the suicides happen because the parent has little or no support. We are very lucky where we live. Our Boo has a terrific school, afterschool therapies and if she was autistic we would be eligible for in-home support. But those therapists and teachers deal with our children hitting, spitting and hurting them. Yet they love our kids. They want our children to succeed.

Parents and caregivers are becoming the walking wounded, suffering from post-traumatic stress of living and working with a child who punches, kicks, sets fire to the house and destroys relationships. We love our children. We hate what their disability makes them do.

There is a difference.

There is also a reason why persons who work with children and adults with special needs have an extremely high burnout rate.

While our children in the US have a tremendous amount of government support available (if you know where to ask) for them, there is zero support for the caregiver. I am not talking about financial. I am talking about emotional support. That shoulder that you need to lean on.

Since I have that support I know full well what those of you without it must be feeling. Know that you are not alone but you have to let us know you need it. My friends know because I go to them. I break with Boo’s therapists and vent to her aides. Sure a few will reach out, but the responsibility is mine to say I cannot do it on my own.

So I implore you, the Kelli’s out there, to know you are not alone. But you need to scream and raise the white flag.

And if you know a parent out there with a child who has special needs reach out. Stop by their house tonight with a pizza and a bottle of wine. Stop by and check in on them. Keep inviting them to events, even if they have to say no. Remember that e-mail is great, but you can hide there. Call, speak to them. Make sure they know you are available to listen without judgment.

Let what happened to Kelli be a lesson to all of us to reach out before there is no one there to catch.

 

I’m thankful…

This week I am thankful for so much and am happy that The Considerer, Kristi and Joy have created this weekly remembrance.  A time to look back on the week that was and say, you know it didn’t really suck.

10. School is officially out. Now, I know I will be singing a different tune next week. But to have no homework battles? Allie is doing the happy dance.

9. A night out with colleagues. I never go to business dinners. I usually make excuses don’t have the time. But this week I went out to a nice restaurant with peers whom you would think outside of work we had nothing in common. Holy crap did we laugh. It was truly a beautiful night out, even if the Bruins lost.

8. I fit into my skinny shorts without having to suck in my gut, that much.

7. Remember that tent/tunnel system? Well guess who moved in…

Yup, Bailey discovered the tent


So I am thankful some one in the house is using it.

6. That while Allie did not get the BEST TEACHER EVER for fourth grade the one she ended up with she is not nervous about.

5. That Boo’s summer program starts in just nine days. Please understand, her teachers and aides so deserve a break. I do not know how they do their job day in and day out with a smile on their face. But I am beyond thankful that they will be back soon. Even better her aide Sydney should be returning.

4. At a recent party there was a bounce house. Boo not only went into it willingly she loved it. The older kids ran all around and she laughed, jumped and was involved. This is huge from just a couple of months ago when the bounce house terrified her.

3. Kristi for letting me know how pet rocks came to be. It had been really bothering me for a long time. In all seriousness, Kristi’s posts make my day. The fact that she took time out of her busy life to help me with a photo issue has not been forgotten.

2. I have two nieces due to be born within the next week. Kind of funny that they are being born so close together when they live a million miles apart. After a long time waiting to have children, my brother and step-brother’s wives are due on the same day. I just hope they don’t choose the same names.

1. That there are only 66 days left of hearing I’m bored summer vacation.

Happy Weekend everyone! I hope you take a moment to enjoy a glass of wine, a ray of sunshine and a quick thank you for making my days easier!


Ten Things of Thankful

I did it!

After two weeks of “training” I did it. I managed to run a 5k and not be the last one across the finish line. My husband ran it with me. He did not train at all. Which makes me extremely jealous, as he never got out of breath.

The race started with motivation from the 19 year-old who organized the race to raise money for Crohn’s Disease. Mackenzie is a cool kid who has battled Crohn’s for the past three years. When she had to postpone starting college due to the disease instead of sitting back and feeling sorry for herself, she organized a 5k.

She is an inspiration for all children not to let illness, disease or hardship to defeat them. As she finished her speech she informed us that this was an “easy” 5k with just one hill. Oh, but it was a killer hill with a cemetery at the top if anyone couldn’t make it!



With those words of wisdom we were off! I started off with the pack, that quickly left me behind. David (thankfully) believes in leaving no man behind so he slowed to my pace. My goal? Keep the 80 year-olds behind me and not come in last.

That hill? It was after the first half-mile. As I am struggling to breathe running up the hill, David says: I know a short-cut. NO! I am not cheating, I am running this damn hill. Boo, in the stroller, is yelling RUN. Now in his defense he did offer to take over pushing her. But I was making a point and have way too much pride to give up.

Although I did slow to a walk. As we crested the hill, David encourages me to start running, after all it’s now down hill and we might be able to pass a couple of teenagers. We round the corner, Boo yelling ‘fast’ and me trying to breathe.

But we did it, we ran a 5k in under 38 minutes (okay, very close to 38, but it was under!).  There is rumor of a runner’s high. When the adrenaline starts to flow and all is peace and harmony.

I never found it.

This is what went through my mind as I ran (thought because I didn’t possess the energy to speak):

Boo really has to stop eating donuts and cookies
David knows way too many people in this town
What time does the Irish Pub open
The next time David jumps onto a staircase and shows off I hope he breaks his ankle
Crap, did I take a wrong turn
Boo screaming “I’m running” really isn’t helping
Does that girl in front of me know her ass is hanging out of her shorts
Why didn’t I know about the dress code for this race
Who can run in all that make-up
Boo please stop yelling FAST I’m doing the best I can
Where the hell is that runner’s high
How can David NOT be out of breath yet
Am I supposed to be listening to his stories
If I finish this I am so getting a burger and a glass of wine

HOLY CRAP There is the finish line!

Phew I’m not the last one across and I didn’t eat one bug

Listen

On Fridays for 5-minutes I hop on the Lisa Jo Bandwagon and just write. Unedited, unrehearsed, just mind spewing to the keyboard.

Five Minute Friday

Today’s prompt: Listen


Listen to your gut. I hear so many parents of children who have special needs that do not follow their instincts. Do not believe just because some one has MD after their name it means they are smarter than you. You know your child from the moment you first feel them move inside you. You know when they first look at you. You know when they first hold your hand. You know when something is wrong before the doctors do. Listen and follow your mother’s instinct to protect their young.




Listen to your soul as it expands to include a love never imagined. When you first conceive friends will tell you that there is an automatic feeling of love. This isn’t always true. With Allie I was too nervous, it took a while to feel that connection. It was there, I just didn’t listen to my heart because I was too worried I was doing something wrong. Then one day I realized that my soul had grown from the love she gave to me. Then Boo came on and it grew again. Kind of like the Grinch who stole Christmas whose heart grew three times too big.

Listen to yourself. This week there has been a lot of blog posts about how woman perceive themselves. Those who think they are fat, those who think they are too skinny, those who worry about the message we are sending our daughters on what a woman should look like. But we should worry also about our sons. They too suffer from body image issues. So listen to how you describe yourself, and stop. Because your child is listening to you and transferring those thoughts to themselves

Listen to the moments of opportunity. Let yourself forget your own struggles and help some one who needs it. It may be as simple as educating a cashier at a grocery store that the word retard is not an adjective. It may be just stopping in an elevator and hugging a stranger who is having a hard day.

Listen to your children. Yes, it is so hard when they talk non-freaking-stop. But once in a while you may discover that they know more than you do. Listen how they stop and spy a spider web that is home to a fairy. Don’t you wish you could hear what they hear?

Listen to yourself, you might be amazed at how awesome you are.

Stop. Okay enough preaching. Go and enjoy the weekend!!!

How not to get the mom of the year award.

No, this is not a post a poor me post. There are days when I know I am not being superwoman.  There are only so many balls I can juggle. Between mom, therapist, doctor, worker and wife.

There are days when I forget to put a sandwich in the lunchbox. Yes, I did, not this morning but recently. I have sent Allie to school three days in a row without bathing her. No she didn’t stink. At least I hope not. I have tried to convince Allie not to attend her school social events and forgot to feed them lunch on the weekend. Unless cookies and yogurt count.

On Monday I seriously took the cake of so-not-mom of the year. Okay, I ate the cake that I had hidden from the girls. In the closet. But I digress.

Boo had a field trip. After the last field trip there was no way I wanted to go and work provided a handy excuse. Since I was already taking time off this week for another of Boo’s appointments I could not justify being out of the office. Of course as so often happens, husband was also working.

I sent Boo on a field trip by herself. Okay, not herself, she was with her aide. I did have her tag pinned to her back letting anyone who may find her, if she wandered, what to do. I was a nervous wreck. But I left her anyway. She may have been the only preschooler without a parent there and she couldn’t care less. From what I am told she had a fabulous time. I still worry that I have scarred her by not being there.

As we got ready for the day my husband and I were talking about how we couldn’t go with Boo and how nervous we were. As I dropped Allie off at the bus stop she said:

Why are you so upset about not going on Boo’s field trip? It’s not like you have ever gone to any of mine.

Yup, not only is Allie the master of the understatement she is also the master of Mommy Guilt. Her revenge?

The Spring Concert. Tonight we are attending the grades 1-4 Spring Music Concert. As Allie is in 3rd grade that means we have to sit thru two grades singing two songs each and then the intermission. Did I mention the Bruins first Stanley Cup game is tonight?

The one upside to not winning mom of the year is that I won’t have to dust the mantle for display purposes.