Category Archives: family

This is an Autism Family

A parent walks into the store, dragging her child kicking and screaming as other shoppers look on.  A sibling walks into the store and says, “next time I will babysit so you can try to get the shopping done”.

A parent answers, “What time is it” for the 500th time with patience that is waning. A sibling tries to redirect the looping by distracting them with Disney Jr.

A parent tells her other child that they cannot attend the school play, because their sibling cannot handle the lights and sounds. A sibling whispers they understand while their heart is breaking. Continue reading

When did I blink?

“Mom, when can I sit in the front seat?” said my child who is still small enough to use a booster seat but old enough that she wants to be the tween.

I remember the first time I had to place her in a car seat. How it took us three hours to figure out how even install the thing. I remember when we would keep her strapped into the car carrier while we grocery shopped.  How I didn’t know how to put the car carrier on the grocery cart, so I put it inside and piled up the groceries around it. (Least expensive shopping trip ever).  Continue reading

It was quite a year

I’m not quite ready to let go of 2015. We had a lot of excitement, a lot of laughs and so many moments where life just went right.

January–I was so happy to be one of thousands who used their blogs to spread compassion and empathy throughout the internet. Yvonne and Lizzi created a call to action. One where we would actively look for moments for all of us to agree that it takes a village to raise a child, and therefore a village to create a world where we put compassion over judgement. Continue reading

I blinked and it’s almost over

This summer I have taken more time off of work than I ever have in the past. I have taken more time to spend with my family. I have traveled and I have connected. I have also disconnected from my phone/e-mail/social crap. I have read more books this summer and watched less reality TV.

I’m freaking exhausted. Continue reading

TBT–Kaylee is determined to Pay It Forward

Today’s Throw Back Post is about my friend Kaylee. A girl who is an incredible hero. Once again she is participating in the Polar Plunge to support Comfort Zone. The camp that allowed her a safe place to grieve and to grow. Please consider to once again donating to her cause. No child should lose a parent, but if they do then they need places like Comfort Camps. Her plunge is coming soon, Feb 28, 2015. Given the current arctic winter we are having, I am hoping she doesn’t have blizzard conditions!

I am in awe of children. Children who want to make a difference in other’s lives. Whether it is a huge movement like Malala or providing comfort for another child. I would like to introduce you to a beautiful seventh-grader named Kaylee.

Continue reading

The Land that the Internet Forgot

You might have noticed I’ve been, ahem, quiet the past week or so. I had a very good reason. I visited a place where the internet hasn’t been invented yet. It’s the best vacation ever. 
Every year we take the girls (and Bailey) to the mountains of Vermont with 20 or so friends. It was great. It was filled with the sound of laughter. And because I am not an idiot, it was also filled with the sound of Sofia the First on Boo’s IPAD. There wasn’t internet but thank the Good Lord there was power.

And bathrooms. And showers. 

There was also seven days filled with friends, freedom for Abby, river rafting, hiking and just getting away from it all. This was our morning view. As in roll over, open eyes and see paradise.

There was also a husband and nephew who decided to go kayaking in the very LATE afternoon. Of course not having any cell service meant no one could check in and let me know that the river was a tad longer than expected and they would not be meeting us at the designated spot/time. Thankfully I did not need to find service and call David’s sister to inform her that I lost her favorite brother and son (who may or may not be her favorite depending on the day). Both boys were returned before the search party was created with hilarious stories of their adventure.

Bailey: Bye Dad, hope to maybe see you again

When you camp with 20 of your closest friends and there is only one child Abby’s age who happens to be her favorite friend, you make her summer. She and her friend were allowed to travel between camper #1 through camper #20 as long as they checked in. We heard, as she ran past: going to Mrs. George, going to Mrs. Black, Going to E’s Nana, Going to HERE. For one week Abby gets to have fun, not have to include her sister and experience being a kid of the 70’s when you were outside all day and every person in the neighborhood was responsible for you. No TV, no electronics just fresh air, rafting, playing in the river and being a kid. 


Boo is included not because of an IEP but because she is adored. There was also ice cream, fireworks, the best community dinners and enough laughter to wish next year could come faster than Christmas.


We hiked a waterfall. Well, we hiked. Boo had to be carried for 5 of the 6 miles as the terrain was a little unsteady for her. The last mile home she hit the flat ground running and I wished she would let me carry her again.


The reason, though, that this is the vacation I look forward to every year is that this is the one week where we are together. No distractions. No fire radio going off at all hours of the night pulling David away from his family. No Words with Friends pulling me away (okay, his is more important). There was no fighting over bedtimes, eat your dinner or practice your flute struggles. There were no therapy appointments, doctor appointments or similar tortures for Boo. 

For this one week we are a family off the grid surrounded by our friends enjoying the same experience.We are, for six too short days, a normal family. 

It was so hard to come home. It was harder to go back to work and stop being mom for 40 hours a week. I miss my girls. The minute we came home I found myself on e-mail, David turned up the fire radio, Abby had to be reminded to practice her flute and Boo returned to her appointments. 

Of course we have to return to the real world. As difficult as it is some days. Our vacation week reminded me that we have to remember to unplug less often and plug into our family more.