Author Archives: firebailey

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About firebailey

I possess many titles: wife, mom, advocate, runner, Bruins fan, lover chocolate and Parrot Head. I believe you can conquer any challenge in this world with family, good friends and wine. I write about most of that and more while keeping my sense of humor in this life I never expected.

I’m taking the easy way out….

Today I am failing as a mom. I am taking the easy way out. No, this isn’t a post for you to say Kerri you are fine, stuff happens. I am not looking for you to make me feel better because I do not deserve it. Because a mom isn’t supposed to be selfish. A mom is supposed to put her pain, her failings, her fears and her sadness aside for her child’s joy.

But I am not doing that today.

Today I am hiding my head in the sand, okay my body at work, and letting David take Boo on her field trip. Last year, I took Boo and we went to a pumpkin patch and apple picking. This year it is the same trip and I am bowing out. This is Boo last year:

You might not be able to see it, but there are tears running down her face. I let her go at her own pace (way behind her classmates). When we got to the patch all the kids were running around, she was overwhelmed. By the dirt, by the pumpkins by the noise, by who knows what. Her teacher came back with us so we were not all alone but by the time Boo got her pumpkin everyone had proceeded to the apple orchard. Again Boo tried but she was in her own world. She hated the field trip and I felt awful for making her go outside her comfort zone, even if it was what she needed. So I held back the tears (incredibly thankful for sunglasses) as the teacher gathered all the kids around for the sign along. Boo was there but not there. Her mind tired and I saw her retreating into herself.

The field trip ended and we left the farm. I cried all the way home. It wasn’t the teacher’s fault, the students or the other parents. They all included Boo. These feelings are my own and incredibly selfish. Because I looked at Boo and felt bad for her. That she didn’t enjoy herself but more than that. That I looked at Boo and saw her disability.

Not what others perceived but, as Kristi posted on Friday, how being in Public showed me how my child was not typical.

And moms are not supposed to do that. We are only supposed to see the beauty and innocence of our little ones. I failed. I cried. I realized that this is my problem and cannot blame anyone other than myself.

I know that this year will probably be different. Boo has more mobility, more words and is no longer afraid of dirt. I am sure that David will come home and tell me what fun it was, that she had a great time. So I apologize to her. Because I cannot face it. I will not chance it being a repeat of last year. I simply do not have it in me to go on another field trip of nightmares.

This is my failing, not Boo’s.

I’m so sorry Boo.

 

I like surprising people

I have kind of a strange taste in music. Some would call it twisted. I tend to listen to anything, my Pandora includes the Eagles to CCR to John Tesh to Big & Rich. If some one asked I would probably say I gravitate to country and/or pop music. But once in a while I like to really confuse my family. And that’s when my mix-tape includes the RAP:


I just love when Eminem mixes his music with artists we thought would never ever ever be on stage with him. I like most of his songs, but the ones when he brings in other artists are my favorite.


Dating myself here, but I think this was the first rap song I ever knew. There was something so incredibly cool about these three women who not only entered the man-world of rap but freaking dominated it.

Eminem owes his career of radio hits to Run DMC. The first group that I know of who took Rap to the mainstream by taking on the Bad Boys of Boston. Run DMC set the standard of how to get your rap song on the mainstream music stations. Although Rich or Clark will probably tell me I am incorrect! Although Eminem did feature Aerosmith in Sing for the Moment.

Going back to my 80’s roots…

I think the Beastie Boys are probably the most underrated rappers out there. Of course, they probably shot themselves in the foot by being too mainstream making us fight for the right to party. Gratitude, though? I wish I could live by their words: “What’s gonna set you free. Look inside you and you’ll see”.

Well I warned you I like Country. And Jason is hot country who can rap.

This post should come with a warning

Okay if you got past the title of this post, you have been warned. I rarely get political / controversial on my blog. I have my opinions (too many according to my husband) but this blog is supposed to be about Boo, our family and how we live in a world we were not quite expecting.

But then the Government shut down and I got a tad irked. I’m lucky. I live in a State where the local government is shouldering some of the federal government’s responsibility. But others are not quite so lucky and this unfairness is what has sparked the coming rant.

Again, you’ve been warned.

To Whom Ever Is Listening in Washington (DC that is),

I’m confused. I am not sure what the problem is at the Capital. However it appears to be a temper tantrum between two sides who seem to have forgotten their purpose. You see, it doesn’t matter if you are a Liberal, Conservative, Democrat, Republican, Libertarian or have purple hair. You haven’t provided a sound defense for what you are currently putting our nation through.

Quite simply, you are making us look like the dysfunctional family we have become. Which would be okay if you would stop airing dirty laundry and start airing common sense. You shut down National Parks, Monuments and buildings with signs that were at the ready to tell the World that the reason vacations and school trips were canceled were due to a Government shut down.

Exactly how much did those signs cost?

This impasse has affected more than government programs but local businesses. A hotel was shut down in VA for having the nerve to stay open during the shut down. This family-run business located on Federal Land had reservations to uphold and now will lose their hard earned patronage while you squabble.

You left the Supreme Court in session and maintained your staffers yet children will go hungry if their local governments cannot underwrite WIC.

Employees have been furloughed with no promise of retroactive pay. These are not young single people living with their parents but men and women who have served their employer, the US Government, with diligence and now may not be able to pay their mortgage or feed their children.

The NIH has been affected by the shut-down leaving cancer patients without protocols and trials.

Next will it be Social Security? Which, is not an entitlement, but something our seniors have spent their lives paying into and now depend on for little things like food, heat and medications.

Our paychecks continue to be garnished for taxes that are to support Government services and you are not providing them. In truth you are forgetting your purpose to your constituents.

It appears that our own Government is attacking those most likely to be hurt to prove their point. Both sides seem to be so stuck in their position that they are not willing to see the fallout.

In the end the question is why? This is the question that the President, the Senate and Congress has not answered for the American People.

Thank you for your time.

 

The Ultimate Soundtrack

When making my mix-tape this week (on time!) I tried to stay current and then realized that the last 4 movies I have seen were from Disney. Oh, and Grease since that is Boo’s current obsession. Proving I am a product of my teen years my ultimate soundtrack would have to include:


We should probably live by the line: Just once in his life a man has his time and that time is NOW and I am coming alive?


If you are going to have a soundtrack then you need John Cusack to pay your mix tape. In a boom box outside your window.


I always felt bad for Ducky and after St. Elmo’s Fire I never really liked Andrew McCarthy anyway.

 

I fell in love, LOVE, I tell you with Lou Diamond Phillips thanks to La Bamba and of course he played the best Young Gun…


Bon Jovi, Lou Diamond Phillips and a great song? What a way to end my teenage years. But uh to live like a teen in my mix tape, if only Cusack would be in my driveway. Cause I know, just know, if he went to my high school he totally would have crushed on me.

31 for 21..okay 30 for 21 I am a day late :)

This post appeared last October when only about 3 people read my blog! Anyway, I am reposting it today to explain why I am participating in the 31 for 21 Challenge and why I am so thankful for their Community adopting other children who do not have Down Syndrome.

In typical Kerri fashion, I was a little late in following the rules.
                                                                                                                               

(originally posted 10/12/13)


I am trying to participate in the 31 for 21 challenge. Typical me, I am already late! But better late than never, right?

The 31 for 21 Challenge is in celebration of National Down Syndrome Month. Although Boo does not have Down Syndrome. A lot of the therapies created for kids with Down Syndrome work for her. So in appreciation…here we go!

Sign language has been key to Boo’s development. Without it I know Boo would still be non-verbal. For Boo, she learns the sign then pairs the verbal/sign and eventually she shouts the word (music to my tortured ears!).

Because of Boo’s speech therapist works primarily (weird coincidence!) with Down Syndrome children, she was an expert in sign and really believed Boo would benefit. C was so right. Boo still uses the more sign, although she will say it in tandem. Signs work for concepts, more than items now. Especially open and close. Boo relies on her signs to get her wants across when words fail. I find that when Boo is tired, she will sign more. C believes that there is more motor planning involved with speaking. Whereas signing is a visual concept Boo gets more readily. She can watch how the sign is formed, unlike a verbal command where so much is done internally.

Her first sign was “more”. I loved “more”. “More” meant Boo would eat (Teddy Grahams were a great motivator). Boo would sign for “more” food, bubbles and bounce. More gave way to “water”, “open”, “book”, “close” and “bubbles”. She signed for “puppy” and  “please” (did my proper mom’s heart proud).


It sounds weird to say this, but thanks to Down Syndrome Boo has benefited greatly. Without her knowledge of signing with Down Syndrome children, C might never have decided to teach us how to sign. It is due to the trials of Down Syndrome children that my Boo was able to communicate. In thanks for them I ask you to come and join me in grabbing the 31 for 21 Challenge button!
 

I’m thankful Kate didn’t run away

Ten Things of Thankful



For about six months now I have been stalking Kate from Another Clean Slate. If you don’t read her regularly, you should. It is so cool to see how I should have lived out my late 20’s early 30’s. You know, if I could have handled living in a city. And been a young, beautiful urban professional.

As many of you know, I’ve been signing up for 5k’s. So this week I am thankful that:
1. Kate answered my e-mail eons ago and rose to the challenge of doing a 5K with me.

2. That Kate finished her first 5k of this year. The bad part is she doesn’t think she did well. The awesome part is I know better. The race wasn’t that busy and she not only finished but finished looking as good as she had when she started.
Me, not so much.

3. That meeting a blog-friend in person is super scary, but turned out to be so comfortable. We seemed to pick up the conversation just as if we were e-mailing one another or reading her blog.

4. That David didn’t freak when I told him we were meeting another couple for the first time that I had never met in person. (He is kinda paranoid about the land of Blog)

5. That when Kate saw David & I for the first time dressed for the Mullet High-5 she didn’t tell Joe to lock the car doors and immediately drive away.


6. That David & I finished this race with our best time ever. 27 minutes. It really helped that the course was just about flat, the sun was hidden and the rain had stopped. Oh I am really thankful that the rain stopped an hour before race time.

7. David let me cross the finish line first this time. Even though he totally held back to run with me.

8. That my friend A landed 2nd place in our age-bracket. I was super proud of her. I finished 82 out of 180 runners. Definitely Kate and I were not last which is always my second goal next to just finishing.

9. The race ended with free beer (which I don’t drink David got two!). When I had my first sip of wine and Kate her first sip of beer she noticed it was only 10am. Neither of us judged so I feel thankful for that.

 


And last but not least, I am glad to say that sometimes things just work out. At our race this weekend Kate and Joe had to endure meeting a bunch of people they don’t know and everyone was just so happy to see one another. David & Joe got along great and they were not ‘strangers’ at all. I am not so sure I would’ve been that brave.

So, thanks to Kate for making my week!

For anyone who wonders why I was dressed so stylish…this is what the true Mullet Marathoners look like:

Oh and Kate, the next time we get together I a) promise not to make you run and b) will be dressed more appropriately!
 
One last thing, congrats to all my friends who participated in Buddy Walks around the Country today!



Life is freaking hard

I’ve always been a working mom. It has been too easy to escape to work everyday. With Allie I could not wait for my maternity leave to end. Let’s face it, home with a newborn is kind of boring.

Then I had Boo and needed the routine of the office. Some place that I made decisions but not ones that would cause pain to my child. I looked forward to going to work and getting away from having a baby vomit on me.

Plus, being able to pay the mortgage is a wicked perk.

The hardest decision I’ve had to make is every morning going to work. Yes, the girls are in school. Allie in 4th grade and Boo in pre-school/SPED program. I don’t want to take them out of their programs, but I wish I had more opportunity to be there before and after school.

Instead I rush home from work. To therapy with Boo or Homework with Allie. Have I mentioned how much I despise homework?

One of these days, I swear I will find the balance between bills and home life. I hope it is before the girls no longer need me home.

And that is how I finished the sentence, the hardest choice I ever made was…

What is the hardest decision you have made lately?



Finish the Sentence Friday
 
And in case you forgot, and really how could you! I am taking the challenge of 31 for 21! 
 

I collect you…NOT

Are you a collector? I mean, serious, as in will ravage any antique/yard/estate/shop sale to obtain some knick-knack? Allie has collections. She has collections of Barbies, Horses (thanks Auntie K), sea glass and Nutcrackers (thanks, mom).

And now there is that freaking rainbow loom. Guess how many bracelet collections she has?

David doesn’t really have collections. He is more of a pack rat. The man has a t-shirt from 1996 (He is wearing it now) and even one from 1983 (REO Speedwagon)–worn last weekend.

Boo has recently started a sticker collection. She doesn’t take the stickers off the backing, but she walks around with them. I blame her Speech therapist.

Me? I don’t collect so much. Don’t get me wrong, I have knick-knacks galore. But I didn’t buy any of them.  I like them, they are unique. Like the baking elves, Williamsburg signs, Cape Cod signs, Carolers (now only out at Christmas) and other what-nots.

I cannot believe I just said what-not.

The collection, though, I am most proud of is my friends. I have kind of an eclectic group. One I am meeting this weekend (woo hoo) for the first time in real life and others I have met via the blog. But also those close to home. The ones that I can just drop by and have a margarita with or a fine glass of wine.

No I do not collect wine. It really doesn’t stay around long enough to collect.

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What do you collect? And also by

Running for more than a nice butt

One of the side benefits of running is that you get to raise money for worthy causes. I sign up for 5k’s every month so I don’t start slacking on my goals. But I refuse to sign up for a race just because. It has to be for a greater good. We have done one for Crohns disease(doing it next year with Kate!) and recently did one for Childhood Cancer. This weekend I have guilted Kate in joining me for the High-Five Mullet race that supports mental health services.

The upside? I get to meet Kate, for real in person.
The downside? She has to run a 5k. Okay, she can walk I’ll never tell

Oh, did I mention there was free beer after the race? Yup, David will be running too!

And while I am super proud of us for running a 5k I am in awe of those who not only run farther but do it without needing an ambulance afterwards. In honor of Down Syndrome month, Michelle’s husband ran in the Air Force Marathon. He is doing it for his beautiful daughter Kayla and others like her. Her family is trying to not only raise awareness but support more research for Down Syndrome. You can read more about their story here and if you have a few dollars to spare on a good cause, please consider sponsoring Mike’s team.

Who knows, maybe next year Kate and I will be ready for a half-marathon!