All kids have milestones that are not in the what to expect (not!) handbook. New moms and dads dream about the first “momma”, the first fish caught and the first time their screaming newborn sleeps through the night.
There are however other milestones they are not aware of and some even I never expected.
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Today I was going to participate in the Finish The Sentence Prompt hosted by the fabulous Kristi of Finding Ninee and her friends Mardra and Kenya. Instead I am sitting here with goosebumps, sick to my stomach.
We lost another person to Suicide, Anthony Bourdain. Continue reading
This past weekend was Graduation weekend on the Cape. I love attending graduation and seeing children that I’ve known longer than they’ve been alive in their cap and gowns. I burst with pride alongside their parents and loved ones, knowing how hard they worked for this small piece of parchment. I take pride in knowing my signature is on their their diploma. That I had a very small hand in helping them succeed.
Truly it is one of my most favorite days of the year. Continue reading
You know when you think something is working and by all appearances it is, then you let someone else test your “thing” and it malfunctions? You have to go back to the drawing board and you are frustrated because you were so sure that your “thing” was working perfectly.
That my friends is life with Bridget. Continue reading
Bridget has this super cool friend, Charlie. Charlie is awesome. He walks her to class every day. He watches out for her at parties. Charlie is the boy that if Bridget was a typical second-grader I would be joking with his mom that I hope he stays sweet and takes her to prom one day. Continue reading
Today’s FTSF Prompt is to show a photo and tell the story behind. it. I’m going to do this a little backwards today. Instead I am going to tell you about the photo, about why these photos are so important and then show you them. Continue reading
Today I’m reposting a blog from last year. I think it is important to remember there are many faces of Autism….and most of them don’t have it. The parents and siblings (and everyone else) who live with Autism never seem to be recognized. Yet without their support, the person with Autism would have so many more struggles to be included.
Originally posted on 4/3/17
A parent walks into the store, dragging her child kicking and screaming as other shoppers look on. A sibling walks into the store and says, “next time I will babysit so you can try to get the shopping done”.
A parent answers, “What time is it” for the 500th time with patience that is waning. A sibling tries to redirect the looping by distracting them with Disney Jr.
A parent tells her other child that they cannot attend the school play, because their sibling cannot handle the lights and sounds. A sibling whispers they understand while their heart is breaking. Continue reading
Bridget loves her princesses. It is funny and shows nature over nurture. I am so not a princess and Abby has been done with make-believe and princesses for years. Bridget loves princesses.
Elsa
Sofia
Elena
You name a princess she loves them and rainbows. She really loves rainbows.
But… Continue reading
I never thought I would have a home. A true home. I always wanted one. I wanted someone to say Good Night John Boy. I wanted a place that would never be taken away, that would be safe and whole. Where people stayed. Not for a few months or years before moving because we needed to go NOW without a plan or a safety net.
Just a home, one where there was laughter and sunshine. Continue reading
When you have a child with a rare disease or a complex medical condition there are may facts you do not know. You do not know how to navigate the healthcare and insurance systems. You do not know how many specialists, therapists and pharmacists you will meet. You do not know how many times you will endure ER visits and hospital.
It’s it in those two locations that there are some little known and unexpected facts you will need to learn. Continue reading
(Un)Diagnosed and still okay 