My first week back blogging and my friend Kristi made it easy for me with a Finish That Sentence Listicle.
Ten Things I Hate About …. Facebook! (and it’s not Mark Zuckerberg’s fault) Continue reading
10 Things
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Author Archives: firebailey
I was holding her back.
My mother-in-law moved in about a month ago. In doing so we had to realign the bedrooms in the house. She moved into Bridget’s room (first floor) and we moved Bridget to a smaller room upstairs. Bridget only needs a bed and a dresser. In truth her bedroom was the guest room with a toddler bed in it. Continue reading
I was lost, but I’m back
I’ve been quiet on this blog for a while, but that is going change. You deserve an explanation for both choices.
Rare Disease Day 15
#RareDisease not so fun fact #15
While most typical marriages are at risk for divorce, special needs couples divorce rates are higher. Rare Syndrome couples even more so Continue reading
A not so little wish
I used to love Christmas as a child. Before the freaking elf was invented, Christmas was fun and full of magic. My mom used to get upset with me when it came to Abby’s Christmas. I would never tell her it was Christmas Eve. She would just wake up (at her normal time) Christmas morning, surprised to see all the gifts.
It was perfect!
She got up at a reasonable hour, I received the best gift ever–not having to answer every single night if Santa was coming.
Then the grandmothers conspired against me. Continue reading
So many things to be thankful…
I try to show my appreciation to my village throughout the year, but Thanksgiving is the day to count them out loud.
Today I am thankful for these three that keep my life entertaining. Continue reading
Reality Check
When Bridget first entered the integrated preschool, I never thought of friendships. I was worried that she could not keep up. After all, barely off her pediatric walker she had to be taken in her stroller from the classroom to recess. I was more worried about her getting knocked to the ground than I worried about her making friends.
Then she did. It happened naturally without any parental involvement or teacher encouragement.
Oh my gosh they were so little
And the House was Open
Last week we went to an Open House at Bridget’s school. It was the first Open House that I’ve been to since the disastrous kindergarten play date. I didn’t want to go, but since first grade was so incredible I wanted to make sure Bridget’s second grade is as successful. We entered the school lobby, tried to explain to Bridget why she did not have her backpack and took a deep breath anticipating the sure-to-be-awful-night.
Except the House was Open and Inviting. Continue reading
The Turtle
I have to start this post with a bit of honesty. Those that know me understand that I am a suck it up buttercup type of person. While I do believe that you get what you give, that if you embrace this world and are kind the world will be kind in return. I do not believe in the other-world, spirits or destiny. I believe we make our own destiny by the actions we undertake. For example I believe that if I stay up all night playing Cribbage with my best brother-in-law I will have a headache the next morning. If I run an obstacle race with Lauren I will be bruised but my stomach will hurt from laughing.
I have, no word of a lie, been asked to leave a spirit shop when I brought Tia (who does believe) to a mystic (?). I was told by the woman that I was cold and not only blocking the spirits but killing their desire to interact. Apparently I was also spiritually blocking someone’s uterus. Anyway, I left (without police escort!) and have led a very happy life even if the spirits believe in me as much as I believe in them.
Then I met Beth from NJ. Continue reading
October 6th a day to celebrate friends
Today is October 6th. For most it is just a day. For a few friends of mine today is a day to celebrate their children, their siblings, their parents and themselves.
Today is the day to Celebrate Cerebral Palsy Day.
Which is weird, in a strange way…that you would celebrate a disability. If you don’t get that moment, that gut check of why a disability should be celebrated I (sincerely) congratulate you on your healthy child and I wish that you would celebrate how incredibly lucky your are to have them.
Those of us who have a child/sibling/spouse/relative/friend with a disability understand why these days of celebration are so important. It’s not that we celebrate the difficult life we are leading. It’s that we celebrate the triumph over the roadblocks this some-days difficult life give us. Continue reading
(Un)Diagnosed and still okay 